Paediatric Haemophilia Centre Regensburg

The Paediatric Haemophilia Centre is part of the Haemophilia Centre in Regensburg. Our multidisciplinary team, which specifically focuses on the needs of children and adolescents, cares for over 100 patients with haemophilia A/B, von Willebrand syndrome and other rare disorders of the coagulation system.

Interdisciplinary, highly specialised team

Our team consists of two paediatricians specialising in haemostaseology and two specially trained haemophilia assistants. A psychosocial team supports families with psychological and socio-paediatric issues. Our physiotherapy team is also trained in treating patients with haemophilia. We work closely with all disciplines at Regensburg University Hospital and St. Hedwig Children's Hospital on an interdisciplinary basis.

Prepared for emergencies: all of the preparations that our patients use are available day and night in case of emergencies and can be administered immediately in accordance with a substitution plan tailored to the individual needs of each patient.

Substitution plan for operations: patients undergoing planned operations receive a substitution plan tailored to the extent of the procedure in order to prevent bleeding complications during surgery.

Factor replacement therapy in home self-care: we care for patients with haemophilia from birth and gradually introduce families to the treatment concept and factor replacement therapy in home self-care.

Inhibitor formation and immune tolerance therapy: we also provide care for patients with inhibitor formation and immune tolerance therapy.

Gene therapy: our centre was selected as one of the few German sites to perform gene therapy in children and adults with haemophilia A and B. This means that, in addition to substitution therapy for bleeding prophylaxis with antibody and factor preparations, we now have a curative therapeutic approach available for the first time.

Genetic counselling: we also provide genetic counselling with regard to the care of carriers and the initiation of genetic diagnostics.

Patient Day: we hold an annual Patient Day at our university hospital to discuss current topics for patients with haemophilia and von Willebrand syndrome.

BeActive Camp: our BeActive Camp is a special programme for children and adolescents with haemophilia and von Willebrand syndrome that supports and encourages them to lead an active and dynamic life.

The aim of our holistic care is to give our patients the skills, self-confidence and opportunities to actively integrate themselves everywhere and participate in a largely normal life.