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Clinical Data Integration Centre at UKR (MEDIZUKR)

Patients: donating data

Clinical research helps to accelerate the detection of disease and to improve its treatment in the future. During a hospital visit, various patient-related data is collected, both on the patient’s state of health and on the treatments administered. For certain kinds of examinations, blood and tissue samples are also taken.

With the patient’s consent, this data and materials can be made available for research purposes and, therefore, support the advancement of medical science. In this way, patients can help to develop new options for diagnosis or treatment and to further improve the standard of healthcare provision.

  • How can I provide you with my data?

    As a first step, a personal consultation is held to provide a detailed picture of how patient data is used in clinical research. Following this consultation, the patient can give their written consent to their data donation and agree to the use of their data in clinical research projects. Consent is always given voluntarily and has no effect on any treatment programme. Patients can also withdraw their consent unconditionally and at any time by contacting the Liaison Office at UKR.

  • How is the data protected?

    Protecting and securing patient data is of paramount importance and is taken extremely seriously. All data donated is anonymised (coded): this makes it impossible to use the data to personally identify any particular patient (data pseudonymisation).

    Donated data is used exclusively for the purposes of clinical research. All use of patient data is subject to the EU General Data Protection Regulation (GDPR). The very highest privacy and ethical standards are, therefore, maintained while acting in the patient’s interests at all times.

    Before being able to utilise the data, each research project is audited by an independent Ethics Committee as well as the Data Use and Access Committee (DUAC) at MEDIZUKR.